Motto: Proverbs 23:19
High School Team: Cedar Park Highschool Cheer
Champion Teammate: Talaya Frazier
Your donation to CC4C supports its mission to heal Maddie.
After a 2 years journey with specialists, Maddie at 2 yrs. old, was diagnosed with an unspecified bone disorder similar to Osteogenisis Imperfecta. Texas Children’s Hospital helped us enroll in a Whole Exome research study through Baylor College of Genetics. Two years later we were finally given an answer. She has a de novo mutation (meaning neither mom nor dad have it) that they believe is causing her issues. To date she is the only one in the world with this mutation so there is no information on what this disease is or potential complications.
Over the last 4 years Maddie has had over 25 fractures, chronic pain and fatigue and other conditions. She spent four years in speech, occupational and physical therapy. She has done two years of three day inpatient Pamidronte (osteoporosis medicine) infusions every three months to strengthen her bones and reduce pain. Overall, she is a happy little girl who loves dancing and playing with her friends. She has an amazing personality and you would never know everything she's been through.
|Sher & Mike Schafer||9/19/2016||$100.00|
|Mel & Paulette Misanko||9/19/2016||$50.00|
|Sally Ann Milavec||9/19/2016||$750.00||Go Team Maddie|
|The Winkles Family||9/18/2016||$100.00||So inspired by your strength, sweet Maddie!|
|Talaya's.net||9/17/2016||$1,500.00||Honored to be your teammate Maddie!|